The State of Celiac Research with Dr. Daniel Leffler on ‘A Canadian Celiac Podcast’
Dr. Daniel Leffler speaks with Sue about the different streams of current research. They talked about the practicality of the different treatments and cures being investigated, as well as the impact on quality of life for celiac patients. The discussion highlighted the diverse approaches being taken to find a cure, as well as comparing celiac disease with other conditions, and what makes this a particularly challenging condition to overcome.
Dr. Leffler is the Director of Research at Beth Israel Deaconess Medical Center and Medical Director of the Celiac Disease Program at Takeda Pharmaceuticals. Listen to the podcast here.
Read Sue’s accompanying blog, ‘What Was I Thinking During the Podcast?’
- A Canadian Celiac Podcast explores information, research, lifestyle issues and personal stories of individuals who have celiac disease or non-celiac gluten sensitivity. The host, Sue Jennett accesses the prominent minds and personalities in the celiac/gluten free community across Canada. Sue counts more than 20 years since both she and her daughter have been diagnosed with celiac disease. During that time, Sue has operated a gluten-free bakery, run a celiac kids camp, and is currently producing and hosting a gluten-free baking show on cable TV in Ontario. Join Sue’s weekly conversations, as she delves into all things celiac and gluten free.
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NEW! Listen to the ‘Gluten-Free Weigh In’ Podcast
- Eating gluten free and trying to lose weight or just managing weight is a challenge. Sue Jennett and her co-hosts are all on different weight loss/management journeys with one thing in common – they are all committed to a gluten-free diet. Each week Sue will be checking in with her co-hosts about their individual journeys. Hopefully their successes and stumbles resonate with you, entertain you, provide you with ideas and and give you strength to continue on your own gluten-free journey to control your weight on a not-so-easy diet. Listen to the Introductory Trailer here.
- Ellen Bayens of www.TheCeliacScene.com speaks with Sue about the suspension of Phase 2 of the Nexvax2® trial. What does this news mean for the research community and the impact it may have on the celiac community. Listen to the podcast here.
- Kristen Neff of ImmusanT – explains the principles of the celiac vaccination in development, reports on the progress made in clinical trials and what is yet to come. Listen to the podcast here.
- Mike Marshall, Chief Operating Officer at Only Oats – gives us a lesson on how Only Oats is using Purity Protocol to produce a celiac-safe product. He shares Only Oats is no longer Avena Foods, what has changed in the company and what has stayed the same. Get the scoop on the new products in the works using the trusted oat source. Listen to the podcast here.
- Dr. Jocelyn Silvester, MD, PhD Attending Physician, Division of Gastroenterology & Nutrition, Department of Pediatrics at Boston Children’s Hospital speaks with Sue about celiac patients and the challenges in finding and retaining them for research studies. Listen to the podcast here.
- Registered Dietitian Esther Assor – with the Endocrinology Program at the Hospital for Sick Children in Toronto about the prevalence of CD in children with T1D, how it affects those individuals, and how the dual diagnosis makes them the same and different from other celiac patients. Listen to the podcast here.
- Celiac Disease Symptoms Go Beyond the Gut – Dr. Moshin Rashid, MD, Med, FRCP (C), Professor of Paediatrics Gastroenterology & Nutrition at Dalhousie University – gives us a comprehensive overview of many of the non-gut-related symptoms that patients present with prior to a diagnosis of celiac disease. We also have a discussion regarding other conditions associated with celiac disease. Both the symptom and associated conditions lists are long, giving way to the current length of time for diagnosis. Listen to the podcast here.
- Abnormal Dental Symptoms in Celiacs – Sue speaks with Dr. David Stevenson, President of the Ontario Dental Association about dental issues that may be the caused by celiac disease. They touch on the importance of sharing a full medical history with your dentist, even though you may not think it has anything to do with your teeth and how a diagnosis can change the way your dental professional structures your care. Listen to the podcast here.
- Kelowna Celiac Kids Camp – Sue speaks with Selena De Vries, a Registered Dietitian who is establishing BC’s first Celiac Kid’s Camp. Listen to the podcast here.
- Eating Gluten Free in Airports – Have you ever been excited or anxious to fly, but then realized you still had to worry about what you’d be able to eat while waiting to board, or worse still what would happen if the flight was delayed and you’re stuck beyond the security line with nothing to eat? Sue’s guest this week, Lisa, has taken it upon herself to write to Customer Service at the Vancouver Airport to request more gluten free options. We chat about her motivation, how the airport responded to her and a great example of how one airport is stepping up for gluten free food. Listen to the podcast here!
- Ellen’s Favourite Healthy Gluten-Free Foods – a follow-up interview with Ellen Bayens of The Celiac Scene on our favourite foods. Episode 45 looked at many of our favourite foods, but in retrospect, most of the foods mentioned weren’t particularly healthy. Ellen shares her favourite low-carb, high protein recipes for 90 Second Keto Microwave Bread, Keto-Asian Cabbage Stir Fry aka ‘Crack Slaw,’ New York Style Keto Cheesecakw and Low-Carb Microwave Cheesecake. Listen to the podcast here.
- Gluten-Free & Italian – Sue interviews Toronto blogger, Ashley Gismondi, a proud Italian-Canadian. Ashley shares how her gluten-free diet fits with the foods she was brought up on. She chats about cooking with her Nonna as a young child and lets us know about some Italian favourites that can be easily made gluten free. Listen to the podcast here.
- Claiming the Tax Credit for Gluten-Free Food – In Canada, a celiac can make a claim on their taxes for the extra expense of gluten-free food. The subject sounds simple enough, but as we find out, the Canada Revenue Agency has made the process laborious with very little positive effect on your tax return. For a professional perspective, Sue speaks with her daughter, Deanna, who is an accountant and has worked with taxes for years. Listen to the podcast here.
- Gluten-Free East Indian Food – Diyaa has grown up in an East Indian family and talks about how gluten and wheat fit into her family’s diet, including family gatherings and events. You may be surprised about some new food finds. Listen to the podcast here.
- Edith Lalanne – speaks about the Practical Guide to Gluten-Related Disorders, the Gluten-Free Diet for Public and Private Senior’s Residences and Meals-on-Wheels Services. Edith explains how the booklet came about and how best to use it as a resource guide. Listen to the podcast here.
- Selena De Vries, RD – answers Sue’s questions about the new Canada Food Guide. The guide takes a different approach and Selena does a great job breaking that down for us. Listen to the podcast here.
- Why Kathy Smart is So Positive – internationally known lifestyle expert, Kathy Smart talks about her self-improvement program to lose weight and get healthier, based on the gluten-free diet. Listen to the podcast here!
- All-Inclusive (Gluten-Free) Resort Travel – Tarryn walks us through the process she uses to check out resorts and Lisa chats about her recent vacation in Cuba. Listen to the podcast here!
- Amy Horrock, RD – talks gluten-free basics for the newly diagnosed, their friends and family! Recommended listening! Listen to the podcast here!
- Host Sue Jennett speaks to the high price of gluten-free food. Listen to the podcast here!
- Melissa, Owner-Operator of Happyditty Bakery – The bakery recently relocated from Victoria, BC to Kingston, Ontario. Melissa and I speak of our shared experiences in operating a gluten-free bakery, many things you would never consider you might have to be concerned with when starting a business. If it was only all about the baking! Listen to the podcast here!
- Holiday Survival Guide – Sue Jennet and Ellen Bayens of The Celiac Scene discuss the Holiday Survival Guide issued by the Canadian Celiac Association. They chat about their own experiences and the valuable advice offered in this resource. Lisa Jeffery (gf_ketogirl) gets special mention! Listen to the podcast here!
- Sue Jennett, Host of ‘A Canadian Celiac Podcast’ – shares the top six things about her celiac disease diagnosis. Listen to the podcast here!
- Jessica Danford, GFreeWifey – has begun a program to donate gluten-free food to public food banks. This may sound simple, but it involves education of both management and volunteers at each food bank as well as mounting campaigns to have safe gluten-free food donated to the food banks willing to handle it. Listen to the podcast here!
- Sue Jennett – Having operated a commercial gluten-free bakery, Sue shares tips that we can apply to our own kitchens. Listen to the podcast here. During the episode, Sue references a video called ‘5 Things Everyone Should Know About Gluten Free.’ Watch the video here!
- Cinde Little Food Blogger – a very interesting chat with Cinde Little of Everyday Gluten Free Gourmet. Cinde is first a foodie, and she brings that love of food and curiosity of new flavours and combinations to the gluten free experience. I made some of her recipes and thoroughly enjoyed them. Listen to the podcast here. • Take in Cinde’s blog here.
- Ellen Bayens of The Celiac Scene – Ellen talks about her favourite things from Bread, Mixes, Restaurants, Pastas and Candy, of course! Listen to the podcast here.
- Everyday Gluten Free Gourmet – Food blogger, Cinde Little shares a host of easy-to-apply tips and techniques for making foolproof gluten-free cookies. Be amazed! Listen to the podcast here. Read Cinde’s Cookie Blog Here • everydayglutenfreegourmet.ca
- Pregnancy and the Gluten-Free Diet – Certified Nutritionist, Aimee Aristotelous, looks at all aspects of nutrition required for pregnancy and relates it to a healthy gluten free diet. She includes meal plans and recipes to suit the different needs of each trimester. Listen to the podcast here.
- Registered Dietitian, Amy Horrock – discusses why celiacs are often vitamin deficient, which vitamins and nutrients in particular may be low and how to address them. Listen to the podcast here.
- Dating Gluten-Free – Sue’s guest this week is Lisa, who is a co-host on her Gluten Free Weigh In Podcast. Lisa is celiac who follows both a gluten-free and ketogenic diet. The episode focuses on an article posted online by The Celiac Scene from Gluten-Free News entitled – Followers of a Gluten-Free Diet Considered High-Maintenance, Selfish and Arrogant. What Gives? Lisa and Sue discuss the premise of the article and how it relates to Lisa’s real life dating experiences. Lisa is funny, genuine and a joy to listen to. Have fun with this one! Listen to the podcast here.
- Dr. J.A. Campbell Research Fund – The Canadian Celiac Association funds research into celiac disease through the Dr. J.A. Campbell Research Fund. Sue speaks with Melissa Secord about the process of awarding grants. James King is currently working on research to look at the many studies that have been done worldwide on the prevalence of celiac disease. His work will amalgamate the data to look at the diagnosis of celiac disease worldwide and what can be learned from the results. Further, James is studying a large group of celiacs in Alberta to identify the impact of diagnosis on the healthcare system both currently and in the future. Listen to the podcast here.
- Schar Gluten Free Foods are now widely available in Canada. This week Sue speaks with both the North American and Canadian representatives for Schar to find out how they are working to get the products into more stores, and bring in more innovative products from their US and European product line. Listen to the podcast here.
- Gluten-Free Communion – Ross Raby of Churchwares Direct and Gluten Free Host addresses some of the confusion regarding the use of wheat in gluten-free hosts for communion in Roman Catholic Churches. Various solutions to resolving the issue of gluten-free communion are also discussed. Listen to the podcast here.
- Gluten-Free Business Travel – Christina Varro is a frequent traveller having navigated eating gluten free in more than 25 countries worldwide. She shares information about the varying requirements one may need to fulfill in order to travel – gluten-free – for business. Listen to the podcast here.
- A Daughter’s Celiac Journey – Sue’s daughter, Deanna was diagnosed with Celiac disease just before her fifth birthday. She is now in her mid-twenties and seemingly well adjusted to the gluten free lifestyle. This interview is an attempt to look at growing up gluten free as a retrospective on how she viewed her life differently because of celiac disease and the gluten free diet. Listen to the podcast here.
- Corinna Meckelborg of Friendly Pantry – is the author of Weeknight Allergy Buster, an innovative cookbook that tackles the dilemma of family meals to accommodate multiple allergies. Her e-book (downloadable) handles a variety of allergies and how to mix and match family meals to suit everyone. Listen to the podcast here.
- Treena Duncan, Incoming President of the Canadian Celiac Association – Treena has some great ideas on how the CCA can look forward with new initiatives to benefit both members and the public. Listen to the podcast here.
- Purest Gluten Free – located in Perth, Ontario mid-way between Ottawa and Kingston, Purest supplies single ingredients flours and baking products along with mixes. All of their products are free of the top allergens. They are currently available in many health food stores and recently have begun to be carried by Walmart. Listen to the podcast here.
- Paul Valder of The Gluten Free Certification Program – This is the organization that certifies food production facilities to be able to use the round gluten free symbol we are all familiar with on our food labels here in Canada. Listen to the podcast here.
- Gluten-Free Consumer Survey with Kim Koeller – Sue interviews Kim Koeller about the results of her survey of gluten-free consumers formulated over the past ten years. As a gluten-free management consultant, Kim knows that the pulse of consumers is a vital indicator of how interested businesses should proceed. Listen to the podcast here.
- What Sue Learned at the 2018 CCA Conference – Sue interviews the manufacturers of the newest products on the market from bread to beer, pasta to chocolate and more. She also visits with some of our familiar brands and what they’ve been up to. All are responding to consumer wants and needs. You’ll be delighted! Listen to the podcast here.
- Manny Sabares of Only Oats – is a Canadian company that produces gluten-free oats safe for celiacs. They use a strict purity protocol that tracks the farmers, the fields, the seeds, the truck transport and only lets the oat grains into the mill once they have been tested to less than 5ppm of gluten (20 ppm is the gluten free standard). Only Oats is “rolling” out a new line of Certified Organic Gluten-Free Oats that includes Rolled Oats, Quick Oat Flakes and Steel Cut Oats. Listen to the podcast here.
- Tips from CCA Conference Attendees – 2018 conference and Vendor Show attendees share their best tips on living with Celiac Disease and the gluten-free diet. Listen to the podcast here.
- Dr. Donald Duerksen – The National Conference of the Canadian Celiac Association was held in Ottawa on June 9th, 2018. A gastroenterologist in practice for adults in Winnipeg, Manitoba, Dr. Donald Duerksen is the Chair of the CCA’s Professional Advisory Council. Listen as he explains to Sue the tools, tests and knowledge that gastroenterologists use to make a diagnosis of celiac disease. Listen to the podcast here.
- Reflections on the Gluten-Free Garage Trade Show – This episode features the voices and opinions of different people who attended the Gluten Free Garage Food Show in Toronto on May 27, 2018. Listen to the podcast here.
- Ronnilyn Pustil and The Gluten Free Garage – The Gluten Free Garage is a pop-up vendor show featuring a wide variety of gluten free foods and beverages. The event is being held at Artscape Wychwood Barns in Toronto on Sunday, May 27th. Sue has been fortunate to see both sides of vendor shows; as a member of the public visiting the booths, and as a vendor selling and sampling her wares. Here she explores what it takes to stage what has become a very popular annual event. Listen to the podcast here.
- Ellen Bayens of The Celiac Scene Talks About Dining Out – Ellen Bayens is an expert at grilling restaurants about their celiac-friendly options. Listen as Ellen goes down her list of questions to ask! She is best known for her resource The Celiac Scene, supporting the gluten-free living in or traveling to Victoria, Vancouver Island and the Gulf Islands. Listen to the podcast here.
- Cathy Brak, Gluten-Free Blogger – Sue speaks to Cathy Brak, a gluten free food blogger with a casual attitude towards meal planning and preparation. Whether you need to spice up your meals, or just plan them better, Cathy gives us some great tips and they are all gluten free! Listen to the podcast here.
- Selena De Vries, Celiac Dietitian – Sue speaks to this Registered Dietitian about eating gluten free and being overweight. It’s very common, but we seldom speak about it. We try so hard to make sure we are eating completely gluten free, that having to concern ourselves about counting calories or sugar or fat, just seems too much to ask. Most of us try to replace our gluten-laden foods with gluten-free ones, but what is that actually doing to our diet? Listen to the podcast here. www.healthbean.ca
- Children’s Author Margie Wirth – Sue speaks with author Margie Wirth who, along with her sister wrote, illustrated a series of cookbook/colouring books to help kids eat more vegetables. You can follow Margie on Facebook at The Carrot Monster’s Gluten-Free Recipes. The books are available on Amazon. Listen to the podcast here.
- Cathline James of Wise Bites – Sue speaks with the owner/operator of Wise Bites Gluten-Free Quinoa Treats about the unique challenges of bringing a top-allergen free product to market and why she does it. Learn more at www.wise-bites.com. Listen to the podcast here.
- Mark Johnson and the CCA Conference – The CCA National Conference is in Ottawa on June 9th this year. Join Sue’s conversation with Mark Johnson to get the latest information on what’s going on at the conference and how to register. I also announce how the podcast is going to make an appearance. Listen to the podcast here.
- Sue Jennett shares what she learned at the recent Restaurant Show in Toronto about the state of gluten free in the restaurant industry. We’ll also hear from the gluten-free producers who were pitching their products to the restaurant and food service companies in attendance. Listen to the podcast here.
- Shelley Case, RD – a well-known Dietitian and international expert on all aspects of the gluten-free diet, Shelley and Sue discuss labelling laws in Canada and the US to help you determine the safety of packaged foods. They also talk about the safety of gluten-free oats. Listen to the podcast here.
- Donna Washburn and Heather Butt – Sue has known these two cookbook authors for many years. They have a special connection since their very first gluten-free cookbook. Join her conversation with two old friends about their recent and final gluten-free cookbook – 100 Classic Gluten-Free Comfort Food Recipes. We talk about their recipes choices and how they go about testing the recipes. Listen to the podcast here.
- Sherry Scheideman, Celiac Counsellor – Celiac Disease has many sides, and on this Episode, Sue speaks with Sherry Scheideman, Registered Clinical Counsellor and diagnosed celiac about coping with many of the mental and social aspects that go along with a diagnosis. Sherry gives us some great coping strategies. Listen to the podcast here.
- Jerry Bigham of Kinnikinnick – Jerry takes us behind the process into how they come up with new products and what they’re working on next. There is a big shift in the direction of gluten free/allergen free and Jerry tells us how they are working to serve both markets. Listen to the podcast here.
- Melanie Laroque of Whisked Bakery in Toronto – Melanie talks about the recent award they have won, and takes us behind the bakery case as we discuss some of the issues unique to a dedicated gluten free bakery. Listen to the podcast here.
- Christina Varro – is a celiac and an avid traveller. She has travelled and navigated eating gluten free in more than 25 countries worldwide. She is a photographer and a wealth of knowledge about many different aspects of travel. Follow her on ChristinaVarro.com. Listen to the podcast here.
- Ellen Bayens, The Celiac Scene – Ellen has worked tirelessly to provide quality information on places to eat and buy great gluten free food on Vancouver Island. In addition, her website features carefully researched information on chain restaurants both in Canada and the United States. She presents comprehensive information on places to eat, trends and current news about celiac disease and the gluten free diet. Ellen is someone with her finger on the pulse of the celiac/gluten free community. She can be found online at www.theceliacscene.com and from there you can link to her other social media pages. Listen to the podcast here.
- Melissa Secord, Executive Director, Canadian Celiac Association – On my first episode am speaking with Melissa Secord, Executive Director of the Canadian Celiac Association. We talk about the new logo, what’s on the horizon, ongoing benefits for members, and the information on the CCA website. The CCA is also on other media, and we talk about how they are getting their message out to all those concerned with celiac disease and the gluten free diet. Listen to the podcast here.