1 in 4 Celiacs First Misdiagnosed as Having Irritable Bowel Syndrome

As many as 1 in 4 people with celiac disease were previously misdiagnosed with Irritable Bowel Syndrome (IBS). Many of the symptoms for IBS (bloating, stomach pains or cramps, diarrhea or constipation and feeling exhausted) are the same as the symptoms of celiac disease. Only 3% of British adults are aware that the symptoms of IBS are also common symptoms of celiac disease.

news-medical.net¹

National charity Coeliac UK, is calling on greater awareness of the similarity of symptoms and urges anyone with IBS to ask their GP for a celiac disease blood test, if they have not already had one.

Norma McGough Coeliac UK Director of Policy, Research and Campaigns said:

“It is essential that awareness of the similarity of the symptoms increases and GPs adhere to the NICE (National Institute for Health and Care Excellence) guideline which states that anyone with IBS symptoms should be tested for celiac disease before a diagnosis of IBS is made.”

Celiac disease is not an allergy or an intolerance but an autoimmune disease where the body’s immune system damages the lining of the small bowel when gluten, a protein (found in wheat, barley and rye) is eaten. There is no cure and no medication; the only treatment is a strict gluten free diet for life.

1 in 100 people in the UK is estimated to have celiac disease but of these, only 30% are currently diagnosed, meaning there are nearly half a million people in the UK with undiagnosed celiac disease.

The average time it takes for someone to get a diagnosis is 13 years from the onset of symptoms; by which time, they may already be suffering with added complications caused by the disease. If left untreated, celiac disease can lead to a number of serious complications, including: anemia, osteoporosis, unexplained infertility, neurological conditions such as gluten ataxia and neuropathy, and although rare, there is an increased risk of small bowel cancer and intestinal lymphoma.

“We urge anyone who has symptoms such as ongoing bloating, diarrhea or constipation and has been given a diagnosis of IBS but not been tested for celiac disease to ask their GP to test them for celiac disease. However, it is essential to keep eating gluten until all tests are completed as otherwise these tests may give a false negative result,” continued Ms McGough.

Source: https://www.coeliac.org.uk/